simonyigindele's blog

Chief Medical Officer of National MS Society, admits Neurologists are in a Turf War

By simonyigindeleMon, 01/17/2011 - 10:09pm

Jack Burks MD, an neurologist and the Chief Medical Officer of the National MS Society acknowledged that the divide was essentially a "turf war" between neurologists and endovascular interventionalists. He accused interventionalists for being "cowboys" who "overstate the positive value" of vascular treatments in an effort to extract money from desperate patients.

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IRS grants 501(c)(3) Public Charity Status to The Reformed Multiple Sclerosis Society.

By simonyigindeleFri, 09/24/2010 - 7:58pm

The Internal Revenue Service of the United States of America has granted on September 15, 2010 501(c)(3) Public Charity status to The Reformed Multiple Sclerosis Society. The application was submitted on August 7 and approved on Sept 15, 2010. The approval letter states: "Contributions to you are deductible under section 170 of the Code. You are also qualified to receive tax deductible bequests, devises, transfers, or gifts under section 2055, 2106, or 2522 of the Code. The DLN# is 17053229348040. The Employer Identification # is 27-3009128.

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Steven is Responding to the Canada Research Chair in Health Law and Policy

By simonyigindeleThu, 09/09/2010 - 11:23am

I sent this response to Mr. Caulfield a lawyer who want MS patients to continue to endure the pain, endure the suffering, and to continue to perish while he and his colleagues are satisfied with with the scientific evidence. Of course he does not put it that way. Below are my published comments:
http://www.theglobeandmail.com/news/opinions/the-cure-for-ms-includes-he...

9/8/2010 4:10:06 PM

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All Interventional Radiologists can now register to treat CCSVI patients through blanket IRB

By simonyigindeleMon, 09/06/2010 - 2:06pm

CCSVI Multi-center Registry

Quick Key

IR = interventional radiologist

MRI = MRI scanner facility

IRB = institutional review board

Outline

What is an IRB

The Pomerado Hospital fMRI BOLD-MS Protocol

Multi-Center Registry for CCSVI Testing and Treatment

What is an IRB?

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New Treatment Trial for CCSVI in Albany New York

By simonyigindeleMon, 09/06/2010 - 2:02pm

The Vascular Group, PLLC, The Vascular Health Pavillion Recruiting
Albany, New York, United States, 12205
Contact: Megan Wilcox, LPN 518-218-7909 wilcoxm@albanyvascular.com
Principal Investigator: Manish Mehta, MD, MPH

Full info here:
http://clinicaltrials.gov/ct2/show/NCT01089686?term=ccsvi&rank=1

Eligibility

Ages Eligible for Study: 18 Years to 55 Years
Genders Eligible for Study: Both
Accepts Healthy Volunteers: No

Criteria
Inclusion Criteria:

•Must be 18 years old or greater and less than or equal to 55 years of age

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Dr. Simka Explains the Issues and possible negative results for patients from CCSVI

By simonyigindeleWed, 08/11/2010 - 9:19pm

As many of you know my wife Ruth was Dr. Simka's 17th patient on Dec 29, 2009. His kindness to receive and treat Ruth on short notice was greatly appreciated.

This is a letter from Dr. Simka to a liberated MSer (not Ruth) that we should all read and consider.

Dr. Simka writes:

I will give you some details on our current policy, and also on our findings coming from gathered data. perhaps, you can post these information.

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Overflow CCSVI Meeting in Victoria, British Columbia on August 9

By simonyigindeleTue, 08/10/2010 - 1:15pm

The Cedar Hill Recreation Center was filled with MS patients and their caregivers with an overflow crowd of about 250 present. They came to learn about CCSVI and to listen to the testimonies of five MS patients who were recently treated for CCSVI by having their jugular veins unblocked and normal drainage of blood from the brain restored to normal.

The meeting was organized by Sandra Birrell who herself recently enjoyed relief from many of her MS symptoms by having having the blood flow through her jugular veins restored to normal.

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The pervasive influence of drug companies on MS Societies

By simonyigindeleFri, 07/16/2010 - 9:27am

1 comment

Interesting article showing the pervasive influence of drug companies on MS Societies and those that are supposed to care for MS patients.

http://rabble.ca/print/news/2010/07/treatment-multiple-sclerosis-not-yet...

Canadian Association of MS Caregivers and Pharmaceutical Companies.

By simonyigindeleWed, 07/07/2010 - 8:26pm

This is the link,
http://www.enfieldweeklypress.com/stories.asp?id=3797

I am working at getting my message honed that there is a big difference between a charity for MS patients (like ReformedMS) and and a professional association for MS caregivers and Drug companies who are only pretending to represent patients. The MSS of Canada should change its name to the Canadian Association of MS Caregivers and Pharmaceutical Companies. I doubt that they will be able to maintain their tax exempt status as a trade association.

Steven's Answer to the Canadian Medical Association's Heartless Criticism of CCSVI

By simonyigindeleSat, 07/03/2010 - 7:58am

1 comment

Dear Steven Simonyi-Gindele,

Thank you for your submission. Below is a copy of your letter as we received it. Your letter, if accepted as an eLetter, should be viewable within 2 business days.

All eLetters will be considered for publication in the print version of the journal. Only letters accepted for print publication will receive a formal acknowledgement by post.

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"MS Caregiver speaks about CCSVI"
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