I am a caregiver for a father with PPMS; currently we are on various lists for the CCSVI procedure. My father took part in the screening at BNAC where it was confirmed that he has CCSVI in his main right jugular and is missing his left altogether.
I am reaching out to hear any stories of people who are quadriplegic from MS who have had this treatment done. I am interested in everything: you plane rides, the doctors, the improvements, everything.
I would be grateful for your stories.
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skier 63
skier 63 on Wed, 07/21/2010 - 8:08amI have seen your name in PLM before. Can you copy the comments you receive over to me also. I have PPMS, I am to have my Doppler and CT scan done in 2 weeks, and then I'll have lots of data. Finding the Doc could be the next hurdle.
Jay