Blogs

St. Joseph's MS Trials

By LarryThu, 04/14/2011 - 7:18am

Good morning, yesrterday the MS clinic at St Joe's in Hamilton On invited me to be scanned for blockages, however I was turned down because I already have had the CCSVI treatment done in Dec. It gave me the opportunity to sing it's praises' to the MS clinic after 4 months under my belt.
As Dr.Harris said, it's after 3 months which is critical. With the increased blood circulation I improved and got stronger all winter.
After 3 months my core really strenthened up and my mobility has improved and it continues.... it's the gift that keeps on giving.

Petition on the Quebec National Assembly to recognize the Zamboni method for CCSVI (French)

By ericetTue, 01/25/2011 - 4:21pm

Petition on the Quebec National Assembly to recognize the Zamboni method for CCSVI (French)

The Quebec National Assembly has an online Petition for Quebec
citizens for the Zamboni method. All Quebec residents
can electronically sign this petition. Please do so!!!!

Process to recognize the effectiveness of the method
Zamboni in the treatment of multiple sclerosis

Pétition :
Processus visant à reconnaître l'efficacité de la méthode Zamboni dans le traitement de la sclérose en plaques

https://www.assnat.qc.ca/fr/exprimez-votre-opinion/petition/Petition-129...

Chief Medical Officer of National MS Society, admits Neurologists are in a Turf War

By simonyigindeleMon, 01/17/2011 - 10:09pm

Jack Burks MD, an neurologist and the Chief Medical Officer of the National MS Society acknowledged that the divide was essentially a "turf war" between neurologists and endovascular interventionalists. He accused interventionalists for being "cowboys" who "overstate the positive value" of vascular treatments in an effort to extract money from desperate patients.

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newSusie

By newSusieFri, 01/07/2011 - 9:44am

3 comments

I had ccsvi procedure Aug. 27 2010 and felt as though whatever higher power is out there, finally answered my prayers. I was back to the way I was before MS took my existence the way I had known it away. My family and I felt like we actually were experiencing a miracle. It is now Jan. 6 and my miracle has slipped through my fingers and MS symptoms are back with a 'bad attitude'. Has anyone else post ccsvi running(falling) into the same disappointments? I feel so ruined by this. In tears I have even said "Zamboni was wrong!" Anybody out there with any advice?

nomoredrugs (allowed) for me - not even an option

By nomoredrugsSun, 12/26/2010 - 11:43pm

2 comments

nomoredrugs (allowed) for me - not even an option - though I wouldn't want to take them after this.

C.R.A.B. – copaxone, rebif, avonex and betaserone – all of these are only supposed to reduce attacks by magic number (1/3) (how can they accurately predict that ?).
http://www.webmd.com/multiple-sclerosis/news/20090504/epstein-barr-virus...

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How could CCSVI angioplasty with stents be any more dangerous than Tysabri or Mitoxantrone?

By nomoredrugsSun, 12/26/2010 - 8:49pm

Tysabri (aka Natalizumab) increases your risk of getting a rare but very serious (sometimes fatal) brain infection (progressive multifocal leukoencephalopathy-PML). This risk increases the longer you use natalizumab. If you are also using other medications that weaken the immune system, such as such as interferon or immunosuppressants eg. azathioprine). This medication should be used alone and only when other treatments have not worked or you are unable to use them. Tysabri is used to treat multiple sclerosis when symptoms appear in cycles of worsening and improvement (relapsing/remitting).

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Pacific Interventionalists

By LarrySun, 12/12/2010 - 11:41am

Hi, MS's, I just got back from Newport Beach on Tuesday, I had the CCSVI
treatment done on Sat. Dec 4/2010, 1 week ago. My left jugular
vein was 100% blocked, my right jugular was 50% blocked; the MRV wasn't as accurate as the veinogram, however, it's still necessary to have the MRV (MRI) which takes about 2 hours. I got both sides ballooned out.

This is the relief and improvements I got immediately and throughout the week:
- less pain med's
- colour returned to my face (no longer the gray look)
- MS fog lifted, less vertigo and better balance

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CCSVI Test

By jissigonisTue, 11/09/2010 - 12:10pm

1 comment

My wife recentley had the CCSVI test in Vancouver, B.C. The three reports I received are very heavey in medical jargon and almost impossible for the lay-person to understand. I wrote back and asked the following question.

"Is Theresa's two jugular veins and the azygos vein blocked, too thin, or refluxing that would benefit from Angioplasty(with a balloon) or the "liberation" treatment, when such an operation is available in Canada"
This is the reply I received.

"Flow quantification studies are highly suggestive if CCSVI with abnormal flow in the jugalar veins."

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ccsvi treatment

By angela hopeTue, 10/26/2010 - 2:30pm

1 comment

I have contacted Pacific Interventional in Newport California, they are performing the liberation treatment. Has anyone heard anything good or bad about this clinic.

Thanks,
Angela

CCSVI Toronto Star Article - Thursday, October 14, 2010

By Julie GoodwinWed, 10/13/2010 - 5:22pm

1 comment

Dear Members,
I was recently interviewed for CTV National News and Canada AM regarding CCSVI and my decision to seek treatment overseas.

The media opportunities continue...
I had a phone interview today with Joanna Smith from The Toronto Star. A photographer came to my home in Guelph, ON, this afternoon so that a photo could accompany the piece. I hope that I represented our cause in a meaningful way.

All the best,
Julie